Thursday, October 13, 2011

Your so Vein! In your face!



Or should I say - On your face! 


Or mine at least. Telangectasia, that is. Little red spots that cause the need to wear thicker makeup. Good Bye Bare Minerals! 


What are they, other than part of the "Big S"? (Scleroderma -and Crest)


Here is a copy and pasted definition since I probably would not do it justice: 

Telangiectasias are small dilated blood vessels[1] near the surface of the skin or mucous membranes, measuring between 0.5 and 1 millimeter in diameter.[2] They can develop anywhere on the body but are commonly seen on the face around the nose, cheeks, and chin. They can also develop on the legs, specifically on the upper thigh, below the knee joint, and around the ankles. 
Why do you get them with Scleroderma? Well - no one is exactly sure - we just do, but since the Big S is a connective tissue disease that affects blood vessels - it makes sense that we would. 


Making sense does not change the fact that, well, I am vain - And I don't really want to look at them! After having a "pick fest" at my magnifying mirror the other day, I noticed that I am getting more of them recently. A few good ones on my forehead, many around my nose (which is common for anyone I think), some collections on my cheeks, although faint for now, "a change is gonna come" and they are a comin'


So, looks like my Bare Minerals Days will be coming to an end and I will be a liquid foundation - powder set kinda girl. No biggie - It's just that I finally started to like the stuff! Finally got down that ol' Kabuki Brush technique. Oh well....Wrinkles or Red Dots? Hmmmm - lol. The quandary of the vain sclero. 


Well, not really too much to post. I had a few minutes so I thought I would share about the telangectasia. I am noticing more. They are a part of the disease. I don't think I have posted about them previously - but they are part of the party, so they've been invited to the blog. 


As a side note - To honor a Beautiful friend of mine who's son also knows a thing or two about "Telangectasia" I must make mention of another Horrible, Rare, Incurable Disease that these little red pests are a part of. It is called Ataxia Telangectasia. It affects the young. It is chronic, debilitating, progressive, incurable, and sadly terminal at a young age and we must fight to find a cure for this disease too! It robs these children of so much and so young. Please visit the AT Children's Project website at: ATCP.Org 

As always - Thank you for reading and I hope if you are living with this disease, it reminds you that you are not alone. This disease is SO variable - so I try to list EVERYTHING I feel, have felt, or wonder if is related, since the websites usually only lists the common symptoms, and there is nothing more lonely than not finding yours among them. Especially when said symptom begins to change your life. I hope this helps, if not even a little. 


I will be writing a post soon about ALL of the things I have felt or had change since my diagnosis - I am going through all of my paperwork and notes as part of my yearly visits, so please watch for that as some of the stuff is never written about, yet when reaching out to other Sclero's MANY of them report feeling/having the same thing. FYI - CT chest on Monday the 17th. Echo done on Monday the 10th. Colo and EGD scheduled for Nov 2, CT abd and PFT are TBD at this point. 


Hope this finds you happy, smiling and doing well. 


Peace and Love!!


P.S. Wish we had an "Occupy Scleroderma!" 


2 comments:

  1. Want to hear your tests results. I was diagnosed at the same time. Georgia

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  2. I had no idea that telangiectasias would be a part of your life too. Whether you are veiny or vainy I love your gutz for being so brave & funny & compassionate & just you! Thank you for sharing my Liam's story with your readers. Us rare diseases need to stick together! Sending you a great big hug!!

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